Eliminating Attitudinal Barriers
Currently, you still find doctors in both the public and private sectors in Ecuador who do not know how to treat a person with a disability and may invalidate his or her ability to make health-related decisions as an adult; our health system still does not have adequate support structures for people who require specialized assistance.
Health professionals must take responsibility and be prepared to communicate on topics of interest, such as sexual and reproductive health, family planning or access to medicines, in a language easy for any person to understand, taking into account that, in everyday life, there are still taboos related to the topic of disability and sexuality. In general, the government only supports the professionals of the National Health System (public sector) with resources. However, continuous sensitization processes are not always carried out, and in the case of health personnel in the private sector, it is not possible to guarantee that they know about it because if they do not have a specific need, then the inclusion of disability simply goes unnoticed. In many cases, it is still the parents or “caregivers” who make health-related decisions for their children or adult-children with disabilities.
Ecuadorian society must change the way it perceives disability in order to eliminate attitudinal barriers such as infantilization against persons with disabilities, which prevents them from exercising their right to decide in a dignified manner due to lack of access to information about their own sexuality or right to sexual and reproductive health care.
Barriers to access were exacerbated under COVID and limited our access to certain medicines and our freedom, impacting our mental health. I think that people with disabilities live in a situation of constant confinement, similar to confinement we faced under COVID. When a PWD like myself goes out on the streets and finds many barriers on the sidewalks where it isn’t even possible to walk or even worse, with inaccessible public transportation, we are denied the right to dignified mobility. So we may choose to not go out and not exercise our right to participate in society.
In my own experience, as a young person with a disability, I always think about what the pro and cons are before going out whenever I get invited to leave my home because many places are not accessible.I always doubt whether I am going or not (if it is about a place I haven’t visited yet) and many times I’d rather stay home.